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Unity for Life Fund

For UMC Cardio-Thoracic Transplant Patients & Caregivers 

The Unity for Life Fund, which resides under the umbrella of the UMC Foundation (an IRS-recognized 501[c][3] tax-exempt foundation), was established in 2009 by a community of UMC cardio-throacic transplant recipeints and their families.

Because UMC is a Regional transplant center, at least 75 percent of its cardio-thoracic transplant patients are from outside of Tucson. In addition to evaluation, transplantation and medication costs, these patients incur substantial expenses for transportation, relocation and housing.

The purpose of the Unity for Life Fund is to assist heart and lung transplant patients and their caregivers who are in financial crisis by providing, on a temporary basis, funds to help alleviate the unexpected, often severe financial hardships created by the transplantation process.

Financial Challenges Facing Transplant Patients

  • LODGING - Each transplant candidate must undergo a mandatory stay of at least one week at UMC for pre-transplant evaluation. Once accepted to the transplant waiting list, a candidate must remain close to UMC for immediate response when an organ or organs become available. After transplantion, a patient must remain close to UMC for up to three months for monitoring. These demands usually mean that an out-of-town patient and his/her spouse have two residences — their actual home and a residence in Tucson — a situation that frequently leads to financial stress and misfortune.

  • TRANSPLANT SURGERY - A double-lung transplant costs approximately $500,000. Even with very good insurance coverage, the transplant recipient can expect to have to pay $30,000-$40,000 of that overall cost.

  • PRESCRIPTIONS - Anit-rejection and anti-infection drugs cost, on the average, $5,000 per month. Medicare does not cover all of these expenses. Also, at a given point the transplant recipient reaches the Medicare prescription-coverage "Donut Hole," whereupon the patient is personally, entirely responsible for the next $4,550 in drug expenses, until Medicare coverage commences again.

Pat

My Story: Heart Recipient Pat

Hi, I'm Pat. For eight years, my heart progressively failed. Then, in December of 2005, thanks to a generous angel and the skilled physicians and staff at UMC, I received a heart transplant.

Toward the end of those eight years, my heart deteriorated so rapidly that I had to be flown via "life flight" from my home in New Mexico to UMC. Because I was unable to work and was quickly accumulating substantial medical expenses, I soon lost my business and then my home. There was no way that I could have planned for such circumstances, or for the cost of my transplant and the very expensive, lifelong pharmaceutical regimen that would follow transplantation. 

In spite of my ongoing situation, my post-transplant life is rich and reqarding, and I remain so appreciative of the great gift that saved my life that I want to help ensure that pre-transplant patients and transplant recipients have sufficient resources to see them through their own crises. The Unity for Life Fund is an important way in which I can do that.


Debbie

My Story: Double Lung Recipient Debbie

My name is Debbie and I am a double lung transplant recipient. I was diagnosed with COPD in 2000 and wait-listed for a transplant in 2006. I gratefully received my new lungs in 2008.

My husband and I had worked all of our lives, and we had health insurance, a savings program, a 401-K plan and Social Security. We thought we were prepared — and protected — for the rest of our lives. But, as we ruefully learned, no one can prepare for a catastrophic illness.

For years my husband and I commuted from Sedona to Tucson for my treatment at UMC. As my condition worsened, though, we had to relocate close to UMC, which meant that we had to add to our existing mortgage the costs of housing in Tucson. Then came the surgery and subsequent anti-rejection drugs. We never thought that we'd have to decide between paying the mortgage and paying for medications. Unable to sell our home in Sedona, we surrendered it to foreclosure. As we did, we temporarily surrendered some of our dignity, too.

Today, I'm blessed with new lungs, my life is full, and I don't look backward. Instead, I'm looking forward toward helping other recipients deal with the staggering expenses that accompany transplantation. I'm looking forward to helping the Unity for Life Fund become a success.


To help cardio-thoracic transplant patients overcome temporary financial hardship, please DONATE to the Unity For Life Fund.

For information on Unity for Life Tucson events, see www.unityforlifetucson.org.


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